What education tools did you find most helpful in achieving the outcomes in the NCICAS and ICAS projects?

How are the patients and/or parents inlucded as stakeholders?  Are they inlcuded in the development of protocols? How are results disseminated following the studies?

Asthma Action Plans are useful tools for all stakeholders, but frequently are designed by health practitioners rather than users (person with Asthma, parent, Community Health Worker,  school nurse, teacher, etc.)  Does anyone have some research or AAPs designed with significant input from users (w links)?